Patient Stories

Our inspiring patients are the reason the 31-Day Challenge was created and why we continue to strive toward creating a breakthrough for every child in our care. You can choose to have your fundraising dollars support a specific area of the Hospital that is meaningful to you.

Brian’s Story

Smiling patient Brian

When Brian was born, doctors couldn’t figure out what was making him so sick. After coding twice and being resuscitated by his mother, Brian was transferred to CHOP where specialists correctly diagnosed his rare endocrine system disorder and began treatment to manage his symptoms. Brian’s family credits CHOP for saving his life. Today, 3-year-old Brian sees several specialists at CHOP and visits more than 15 times a year for regular appointments.

Charlie’s Story

Smiling patient Charlie

From the moment Charlie was born, he had trouble breathing. His family turned to CHOP’s Newborn and Infant Chronic Lung Disease Program for answers. With the program’s specialized care and coordinated approach, Charlie grew strong enough to finally go home. Today, the 2½-year-old is thriving.

Claire’s Story

Smiling patient Claire

Diagnosed with spinal muscular atrophy at a year old, Claire didn’t have the strength to speak or feed herself. With the help of a breakthrough drug, physical therapy and her healthcare team at CHOP, she can now crawl, stand and walk – and is gaining strength each day.

Emily’s Story

Smiling Patient Emily

Born with serious heart defects and a rare craniofacial condition, 15-year-old Emily has endured more than 30 surgeries in her life. Through it all, she has tried to remain positive, keep fighting and teach kindness. Last year, she and her 31-Day Challenge team, Merrill Crew, completed 3,026 miles to support kids at CHOP!

Johanna’s Story

Smiling patient Johanna

When Johanna was being treated for leukemia at CHOP, her mom noticed massage therapy was offered to kids as they waited, and it seemed to calm them. Now that Johanna, 9, is in remission, she and her mom are working to help other patients get the same benefits from integrative health practices like massage.

Joseph’s Story

Smiling patient Joseph

Joey was born with multiple disabling and rare genetic conditions that impacted every aspect of his life. Overwhelmed, confused and scared, his family brought him to CHOP and discovered a level of support and hope they didn’t know existed. “In a world that seemed to present our son with closed doors and dead ends, CHOP opened those doors and guided us down the right path,” says his mom Laura.

Owen’s Story

Smiling patient Owen

Diagnosed with Tetralogy of Fallot before he was even born, Owen was carefully monitored at CHOP. At five months old, he received heart surgery and recovered quickly. But when he was 2 years old, Owen contracted RSV and needed further care from the Cardiac Center at CHOP. Today, Owen is an active and personable 4-year-old with boundless energy.